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Wednesday 16 July 2008

Alt-Ctrl-Deleting Myself

... I'm extremely frustrated. By this time, I was supposed to be back to hiking. I was supposed to be dancing. I was supposed to be counting the mere weeks until I could wear high heels. For crimony's sake, I was supposed to be showering inside the shower rather than soaking the bathroom floor because I can't climb into the bathtub by myself.

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Friday 27 June 2008

Introducing Jacques

In all the reading I've done about nerve pain in the last week, a common thread has been "people will not understand just how much pain you are in" and by gosh, it's true. I have known people with pinched nerves or nerve damage and I've thought "I'm sure it hurts but have you ever tried bone cancer hurt? It's a whole new kind of hurt. So suck it up, pansy." Well, at this present moment I have both bone cancer hurt and nerve pain hurt and the only sucking I'm doing is through the straw in my whiskey on the rocks.

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Wednesday 11 June 2008

Self-Hyphenated

I've had the best of intentions to write a blog entry in the last week with updates on my homecoming and medical progress but I've been kept quiet by wanting to have something more to report than "went to bathroom by myself".... I'm selfishly vain like that.

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Wednesday 28 May 2008

Is That a Surgery-Drain in Your Pocket or Are You Just Happy to See Me?

When we talked about the huge possibility that I would have a seizure during my operations, there were four windows of time that were considered "the worst possible times" for a seizure to happen. Because I always take on a challenge, I had not one, not two, but three grande mal seizures during one of those windows. Things could have been worse. Obviously. I'm still alive. But the timing was nearly catastrophic. One surgeon surmised it this way: "When we got you stabilized and began to work on repairing the damage from the seizures, it quickly became clear that it would be far easier to amputate your leg than reconnect it. In fact, we discussed it."

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Tuesday 27 May 2008

Putting the "Coup" in Recuperate

....More importantly than doing some pretty gross stuff in the past week, Bethany and Brit have been the bestest at pretending that me being a crippled, oozing, vomiting, whiny mess is completely normal and that they just love hanging out in hospitals. And that has been really cool.

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Saturday 24 May 2008

For Some Insane Reason, I Feel Like Crap

It's been 90-some-odd hours since I've had a cup of coffee. And the last cup of coffee I had was from 7-freakin-11 which was exciting because it was the first 7-11 I've been to since I moved to Mexico in 2004 but was still coffee from 7-11. When I woke up from surgery, after I asked for water (which Bethany so sweetly publicly broadcast for me), I asked for coffee.

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Monday 19 May 2008

Legalese and Medical Jargon

For legal reasons, several major events in my life in the past 6 months were un-bloggable... a few were even un-speakable to friends. These legalities ranged from difficult trials in both my life and the lives of loved ones, really exciting turning points in my life that needed to be fully "turned" before I could speak publicly about them (almost completely revolved! stay tuned!), and, most recently, one bizarre day that can only (legally) be summed up by saying: "It involved an eye patch, feathers, a confidentiality agreement and half a dozen cases of grappa."

And now, I'm simply blogging to say... I won't be blogging again anytime soon. I am headed into surgery in almost exactly 36 hours.

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Sunday 27 January 2008

It's Getting Hot in Here

I made this decision recently (considering this is January, one might call it a "resolution") to be happier. This may sound like a completely unquantifiable goal (which, according to my dear friend, Sylvia, is not appropriate for a resolution and thus my calling it a "decision" instead) but I have put into place and into a Moleskine journal how I want to accomplish raising my happiness quotient. It's working. By golly gosh, it's working.

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Sunday 14 October 2007

Going to Hell in a (Hot, Latin) Handbasket

"And the best thing about him? He has a serious health condition!"
"Isahrai, did you seriously just say that the best thing about your new boyfriend is that he is sick?"

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Sunday 30 September 2007

Frustrated Frustrated Frustrated

My closest friends have never given me unsolicited advice on how I should treat my cancer. My closest friends have never told me that the fact that I have remained alive, fairly mobile, self-sufficient, and even quite healthy despite a narcotics addiction, daily blindness spells, seizures, persistent insomnia, and constant excruciating pain, is pointless because I am not spending all of my time trying to cure the cancer. My closest friends know that I might just die in the next week, next year, next decade but I sure make a delicious carrot cake and occasionally make people laugh and the fact that I live a life on the edge makes me a very nonjudgmental, very good listener so they love me in the moment and will worry about the moments when I'm dead... well, when I'm dead.

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